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Archive for Author: nonsolomeeting

Dec 02 2024

0

Patients with moderate hemophilia A and B with a severe bleeding phenotype have an increased burden of disease

Anna Rita Ubaldi

news, News

Patients with moderate hemophilia express varying bleeding phenotypes. To assess the burden of disease...

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Nov 29 2024

0

Teenagers and Adolescents with Hemophilia–Need for a Specific Approach

Anna Rita Ubaldi

news, News

Adolescents with hemophilia are a patient population with special requirements, having to manage their...

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Nov 26 2024

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International Society on Thrombosis and Haemostasis clinical practice guideline for treatment of congenital hemophilia A and B based on the Grading of Recommendations Assessment, Development, and Evaluation methodology

Anna Rita Ubaldi

novità terapeutiche en

Hemophilia is a rare congenital bleeding disorder that results from complete or partial deficiency...

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Nov 26 2024

0

Hemophilia and Other Congenital Coagulopathies in Women

Anna Rita Ubaldi

news

Deficiencies of factor VIII (FVIII)/von Willebrand factor (VWF) or factor  IX  (FIX)  are  underappreciated ...

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Jul 01 2024

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Gene therapy for haemophilia A and B, from basic principles to clinical implementation: An illustrated review

Anna Rita Ubaldi

novità terapeutiche en

With recent approval of the first two gene therapies for haemophilia A and B,...

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Jun 29 2024

0

The current challenges faced by people with hemophilia B

Anna Rita Ubaldi

novità terapeutiche en

Hemophilia B (HB) is a rare, hereditary disease caused by a defect in the...

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Jun 27 2024

0

The underevaluated impacts of the therapeutic revolution of hemophilia on women and girls

Anna Rita Ubaldi

safety therapy, sicurezza terapia

The advent of new treatment options over the last decades has markedly improved the...

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Jun 27 2024

0

Management strategies in persons with inherited haemophilia requiring antithrombotic therapy: A scoping review

Anna Rita Ubaldi

novità terapeutiche en

Thromboembolic events are increasingly reported in the aging haemophilia population. The purpose of this...

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Mar 26 2024

0

Delivery of gene therapy in haemophilia treatment centres in the United States: Practical aspects of preparedness and implementation

Anna Rita Ubaldi

novità terapeutiche en

Haemophilia treatment centres (HTCs) and healthcare providers (HCPs) will need to adapt to a...

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Mar 26 2024

0

Identifying performance-based outcome measures of physical function in people with haemophilia (IPOP)

Anna Rita Ubaldi

safety therapy

Recent recommendations of core outcome sets for haemophilia highlight the need for including measures...

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